Say the word “exercise” to a person with Fibromyalgia, and you will most likely get a negative response. Exercise is a harsh and ugly word. It has become synonymous with pain to most of us.
Rare is the Fibromyalgia patient who embraces exercise.
Not only does it elicit a pain response in most of us, but it also sends our defenses up. Too, too many times we have heard the unsolicited advice, “If you would only exercise you would feel much better.” We could all give examples of some of the insensitive and inaccurate things we have heard, that is not at question here, but what is under consideration is what truth is there in those comments?
It is hard to consider the validity to a comment that has raised our defenses and left us feeling misunderstood. But what if, regardless of how misinformed the comment and commenter, there is an underlying validity to it? Should we continue to be defensive and ignore what instinctively we already know? Who are we hurting if we do this? Not them, that is for sure.
Be Mindful
The fact is, not all exercise is good or even possible for most Fibromyalgia patients, but some form of mindful movement is essential if we ever want to improve our symptoms and our overall wellbeing. And yet it seems so counterintuitive: “It hurts to move, so you are telling me I need to move?” How does that make sense?
A lot of research has been done on this topic. Article after article has been written touting the benefits of exercise for Fibromyalgia. Here is a summary of the benefits of exercise for those with Fibromyalgia from WebMD:
- helps restore the body’s neurochemical balance and triggers a positive emotional state
- boosts levels of natural endorphins — pain-fighting molecules
- triggers the release of epinephrine and norepinephrine, hormones that are known to boost alertness
- burns calories and makes weight control easier
- gives range-of-motion to painful muscles and joints
- improves a person’s outlook on life
- improves quality of sleep
- improves one’s sense of well-being
- increases aerobic capacity
- increases cardiovascular health
- increases energy
- places the responsibility of healing in the hands of the patient
- reduces anxiety levels and depression
- relieves stress associated with a chronic disease
- stimulates growth hormone secretion
- stimulates the secretion of endorphins or “happy hormones”
- strengthens bones
- strengthens muscles
Would your life and your symptoms benefit with even one of the listed improvements? Then let’s step back from our conditioned response to exercise and think about how we can approach mindful movement with more positive results.
Be Gentle
This really is a matter of reconditioning our response to, and expectation of movement. Societies idea of exercising for health is to push through the pain; No Pain No Gain. Absurd really, and an approach that will guarantee failure for those of us living daily in pain. Take that approach and turn it inside out and then upside down. Gentle, mindful movement is the key to exercising with Fibromyalgia.
If you are familiar with my blog at all you know I am a huge proponent of yoga. Well I learned the hard way recently that I need to revise my ardor of yoga.
I Love Yoga, But Not All Yoga Loves Me
My first experience with yoga years ago was a No Pain No Gain experience. Even though I made an attempt to explain Fibromyalgia and my limitations to the instructor, she still pushed me way beyond my means. It was an awful experience and I was done with yoga. Fortunately, Fibromyalgia has taught me to consider and reconsider everything, because, when given the opportunity to practice yoga again, I did and had a completely different experience. It was one of the greatest epiphany moments I have had. Movement without pain. Hallelujah!
But then recently I had a setback to my love affair with yoga. For financial reasons I was no longer able to attend the gentle yoga classes that were having such a positive impact on my health and my symptoms. I was forced to look for alternatives; I tried YouTube videos with no success; found a few sources on Facebook that were okay, but not great; rented a few DVD’s, not even close. Then I resorted to buying a Yoga for Beginners DVD. I mistakenly interpreted “for beginners” as meaning “gentle.” Boy was I wrong. Massive failure and major flare-up.
But We Are Resilient – Remember
So I looked again specifically for “gentle” yoga, and I found a free class being offered at a local library. My love was back. I spent the next restorative hour in mindful movement so gentle I sometimes wonder if it is really benefitting me, but it is. The result was no flare, days of improved cognitive function, better sleep, and decreased pain – all from one class!
Not All Movement is Created Equal
So you tried yoga and it hurt and sent you into a flare and now you are done with exercising. Exercising is not for you. I could not possibly understand how severely exercise hurts you because if I did I would not be telling you to do it.
I understand all of the reasoning behind not exercising, because I used them all myself for many years. And if I had tried yoga again and it had been anything other than gentle and restorative, I would still be reasoning myself out of attempting any form of movement. It is understandable. We have become conditioned by our pain. But the really great thing is that we can also become reconditioned.
First you must trust that your muscles need movement. The longer they remain inactive, the more severely they will continue to hurt, the less energy you will have, and the harder it will be for them to support your frame. Your muscles want and need to move.
Next you have to find the appropriate movement for you. It may not be yoga. Maybe it is Tai Chi or Qigong. Maybe it is some form of water movement. Maybe it is a slow and gentle walk. Find what works best for you. Find what you love and what makes your body say Hallelujah.
Finally you need to accept that you will feel sore and there may be some discomfort, but you should not become discouraged by it. Consider how long you have been inactive. Honor you body and your limitations, but do not use them as the reason for not trying.
As with all things Fibromyalgia, there is no easy answer or quick fix, but if you intend to get better, then mindful movement is a necessary step towards wellness. Do not give up if your first attempt is a failure. Regroup and recommit yourself to mindful movement. When you find what works for you the rewards will be many, including an increased range of pain free movement. And as I like to say – be sure to take baby steps to avoid the making the painful leaps.
Mindful movement and gentle are so important with everything! This is great enouragement. Thanks for being gentle, Daphne.
Had a fibrofog moment with name, Dannette. So sorry.
I loved the blog. It made me feel better reading it because you too understand exactly what I feel and get it. And it does get frustrating when people think you have to , just work through the pain. I pushed myself so much more than I should ever have because ,”it’s the right thing to do”! If you’ve ever needed to lose weight , if makes it that much worse because of peoples perceptions. So, your blog just made me feel better and took off the pressure that i put much too often on myself. Big sigh 🙂
Great post. A wise doctor once told me that it’s very important to find exercise (or, gentle movement) that’s appropriate for your particular body, and I agree with him and with you.
I have a LOT of pain and am a fibro sufferer myself so please remember that.
I find that the “gentle” thing doesn’t do it at all. I must sweat a ton and really wear myself out, and yes, at first this may trigger some things, but there really is a point where you work through it.
There are days when I only feel great once I am really working out and for about an hour after.
But I have learned after years of being gentle, that that path eventually leads to MORE stiffness, more pain, and that it is HARD WORK that pumps blood through those sore spots and adrenaline into my foggy brain.
Eeekkk did you say exercise? I have found that stretches work well as does walking.I am sore afterwards but it doesn’t last. I still have flares and during those times tend to slack off on the walking. Great encouraging post!!! If I had a pool I would swim, I have a major phobia with public pools 🙁
Great post, I really would love to find the right mindful movement. I was up to one hour of a gentle walk per day in June then had a major flare up with sciatic nerve, then another one and well….have not done much since. I went to the zoo the other day and literally cried I was in so much pain, but I don’t know how to say “no” to enjoying life so I toughed it out for hours until I had to sit and make my bf see the last exhibits alone.
What do you do when you have a lot of walking to do and can’t avoid it?
Also, I love the name Daphne too, I have a pet with that name.
I recently discovered your blog and am really enjoying the way you stress the positives–what things make you happy, etc. I was diagnosed with Fibromyalgia earlier this year. I’ve had to give up teaching ballet because it causes too much pain, but I started a blog sharing combinations that other teachers can use in their ballet classes and it has really taken off! It gives me pleasure to know that there’s a way I can still contribute to the education of dancers without standing in front of them demonstrating the steps myself. Yoga has been my greatest form of relief, too, along with the occasional massage when I can afford it. I work for a bank now, and am fortunate to work from home three days a week. Thanks for your wonderful blog!
I just wanted to chime in here. I tried getting on the treadmill or taking walks and it really was only making me hurt more. I went back to spinning which was my addiction eight months ago. I was afraid at first, and really not sure if this was going to set me back or make me better. I was amazed at how little pain I had after my first spin class, since I first got Fibro. It seems to be the most gentle exercise that I can find for my body. My instructors are aware that I have Fibro and Neurocardiogenic Syncope and they never push me. I find myself smiling through the whole class. I’m really proud of myself for taking the risk and putting myself in the saddle again. I hope that everyone will try to find an exercise that is gentle for them and gets the rewards that come with it. If you tell yourself that you “can’t”, you never will be able to. Tell yourself that you “can” and you’d be surprised what benefits exercise will make for you and how your pain may decrease. Give it a try, it’s worth it!!
Trish
Sorry… my name is Trish!!!
it’s amazing how differently people are effected by fibro and cfs. I spent time with a friend with fibro recently, and found that where i can walk for a fair way, but cannot ride a bike (after ten years of riding my bike every day), he can ride a bike but not walk! So for us both to get from my house to the shops, we would say goodbye at my house, then he would ride my bike and i would walk there! I also know a teenage girl with cfs who must exercise a lot to feel good, but often exercises too much and crashes.. i suspect those of us who benefit from lots of sweating and puffing have more of a problem with our eliminatory systems, while those who need very gentle stretching have more of a problem with having very low basic energy levels, and so simply can’t cope with expending that much energy. I’ve taken two different yoga classes recently, and found that while i was in the class i felt quite good, but my old attitude of pushing myself too hard is still very much there, and both times couldn’t walk for a couple of days afterwards. i will look for a class with “gently” in the title, and hope it helps.
I really think, no matter what anybody says, Chronic Fatigue & Fibro are NOT the same thing. People with CFS/ME have systems that go completely haywire if they exercise. But for Fibro, I am becoming more and more convinced that moving our bodies is a good thing for us. Just from reading this quite persuasive 🙂 article (and watching Ms. FibroHaven over the past year) and all the comments…finding a way that you can move your body that will help you is one of the best things people with fibromyalgia can do.