Last month I had the honor of hosting the first Fibro Focus event organized by the National Fibromyalgia Association and their sponsor Pfizer Inc. The event was open to the local North San Diego community, and was attended by more than 50 people, including members of FibroHaven support group. I was thrilled to get the opportunity to meet Lynne Matallana, founder of the NFA. We share a passion to support, educate, and raise Fibromyalgia awareness. I have looked to her example many times over the course of the last several months since beginning my blog and support group. Meeting her in person … [Read more...]
30 Things About Me & One About Facebook
FibroHaven on Facebook Last month I started a FibroHaven page on facebook. I have been promoting it quietly with a link on my sidebar, and with little fanfare we are already up to over 200 participants. It is meant to be a compliment to my blog and a quick way for me to share current articles and information. You do not need sign up on facebook to participate. Just click on this link to FibroHaven on facebook and join in on the conversation. If you are signed up on facebook, click on the "become a fan" button and the daily posts will feed automatically to your home page. I hope you enjoy this … [Read more...]
Lynne Matallana and The National Fibromyalgia Association
If you are not already familiar with Lynne Matallana and The National Fibromyalgia Association, you should become so. Lynne founded the NFA in 1997, and has turned her hard work and advocacy for Fibromyalgia patients into the largest nonprofit organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and the NFA are at the forefront of our Fibromyalgia crusade. Spend some time on the NFA's website and you will see that they are the leaders in Fibromyalgia awareness and advocacy. Today I want to share with you this very important video of a presentation … [Read more...]
Guest Post: Health Care Rumors by Fibrochondriac
Today is a proud day for me. Today I get to introduce you to a new member of our Fibromyalgia blogging community, Kathy of Fibrochondriac (don't you just love that name?). But Kathy is not just any blogger to me. She is also a member of my local FibroHaven support group. I am so happy and proud to have another FibroHaven voice on the web. I have mentioned before, we are a resourceful bunch, so expect a lot of topical and useful information at Fibrochondriac. I could tell you that I appreciate how thoughtful and well-researched Kathy is, or I could tell you that she challenges me to think … [Read more...]
Follow up on Dr. Whitcomb & NRCT
So that happened! I intended to write this follow-up post on my experience with Dr. Whitcomb and his Neurologic Relief Centers Technique last Monday, but have been sidelined by a bad flare-up. Yes, I do attribute my flare to the workshop and testing technique, but even so, I intend to give you a fair account of the workshop, although as with everything on my blog, it will be full of my opinions. It may be a lot to follow, so I hope I have managed to present a readable review. The logistics of the day went like this: I was initially invited to the workshop by a local acupuncturist who I will … [Read more...]