If I asked you what your biggest challenge has been since developing Fibromyagia would you say the isolation? For many people the answer would be "yes."Â Isolation is a very real issue for people living with Fibromyalgia and chronic illness. Many of us have had to change careers or quit working altogether. We limit our socialization because it is too painful or we are too tired to participate. And eventually we find that our social circles have moved on, or they cannot relate to the unpredictable and debilitating nature of our illness. Fibromyalgia is an elusive illness and easily … [Read more...]
Lynne Matallana and The National Fibromyalgia Association
If you are not already familiar with Lynne Matallana and The National Fibromyalgia Association, you should become so. Lynne founded the NFA in 1997, and has turned her hard work and advocacy for Fibromyalgia patients into the largest nonprofit organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and the NFA are at the forefront of our Fibromyalgia crusade. Spend some time on the NFA's website and you will see that they are the leaders in Fibromyalgia awareness and advocacy. Today I want to share with you this very important video of a presentation … [Read more...]
I Lost Control and Liked it!
Yesterday was FibroHaven's monthly roundtable meeting. The topic for the meeting was "Working With Fibromyalgia." The plan was to have a focused discussion and answer questions like: Are you able to work? Did you have to change careers? Do you work full-time or part-time? Are you self-employed? Do you work from home? Are you on disability? Can you work while on disability? Topics for a very interesting conversation, right? (In fact the latest edition of Fibromyalgia Aware Magazine is focused on this topic. If you are not already subscribed, I highly recommend you do and start … [Read more...]
Guest Post: Health Care Rumors by Fibrochondriac
Today is a proud day for me. Today I get to introduce you to a new member of our Fibromyalgia blogging community, Kathy of Fibrochondriac (don't you just love that name?). But Kathy is not just any blogger to me. She is also a member of my local FibroHaven support group. I am so happy and proud to have another FibroHaven voice on the web. I have mentioned before, we are a resourceful bunch, so expect a lot of topical and useful information at Fibrochondriac. I could tell you that I appreciate how thoughtful and well-researched Kathy is, or I could tell you that she challenges me to think … [Read more...]
Follow up on Dr. Whitcomb & NRCT
So that happened! I intended to write this follow-up post on my experience with Dr. Whitcomb and his Neurologic Relief Centers Technique last Monday, but have been sidelined by a bad flare-up. Yes, I do attribute my flare to the workshop and testing technique, but even so, I intend to give you a fair account of the workshop, although as with everything on my blog, it will be full of my opinions. It may be a lot to follow, so I hope I have managed to present a readable review. The logistics of the day went like this: I was initially invited to the workshop by a local acupuncturist who I will … [Read more...]