On March 12th I was happy to post a much anticipated update to the status of the National Fibromyalgia Association. From it we learned of Jan Chambers and her recently established non-profit The National Fibromyalgia and Chronic Pain Association, and of the several NFA programs that have been transfered and are now going to be preserved by the NFMCPA. Because of the confusion and concern that remained about Jan and the NFMCPA, I reached out to her and asked if she would be interested in making a statement about the work she has been doing and about the future intentions of the NFMCPA as a … [Read more...]
Update on the National Fibromyalgia Association
There has been much speculation recently as to the status of the National Fibromyalgia Association due to their recent staff layoffs and cutbacks on major programs and services. Many of us have been left frustrated with their silence as to the state of things. For me, I was most concerned that the FM community would lose its most visible non-profit voice. Despite its recent struggles, the NFA has been the leader in bringing focus, awareness, and understanding to fibromyalgia. We have all benefited, if even indirectly, from their efforts. If there is one constant in life - it is change. And … [Read more...]
Get Fibromyalgia AWARE.
Are you AWARE of one of the best resources for Fibromyalgia information on the web? The National Fibromyalgia Association is the leading non-profit organization dedicated to improving quality of life for people with Fibromyalgia. Their website has been a great resource for me as an FM patient, advocate, and support group leader. The NFA is focused on creating programs dedicated to spreading Fibromyalgia Awareness, like the Fibro Focus events that took place last year, which my support group was fortunate to participate in. The NFA truly is the leading authority on Fibromyalgia, so when … [Read more...]
Are You Aware? Fibromyalgia Awareness Day is May 12
History of Fibromyalgia Awareness Day from the NFA In 1993, May 12 was designated as the International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) by Tom Hennessy, the founder of RESCIND, Inc. (Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases), to memorialize the birth date of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross. Nightingale contracted a paralyzing, CIND-like illness in her mid-thirties and spent the last 50 years of her life virtually bedridden. Despite her … [Read more...]